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By V. P. Prasher

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Forty two of these agreed to be interviewed, whilst a further six carers, who were unable to complete the diary wanted to share their past experiences of their daughters’ menstruation and were also interviewed. Twelve interviews were carried out face to face in participants homes, 47 were telephonic interviews. Interview topics included menarche, menstruation, self care and then focused on PMS. FINDINGS Results from the interviews showed that whilst most carers were unable to give the precise age, they were able to estimate their daughters age of menarche to within 2 or 3 months.

In terms of the protective/resilient factors, three main themes were identified by the staff, firstly being proactive in life by starting within ‘families and school’ thereby promoting emotional literacy skills, self-esteem and empowering these women to speak up for themselves. Secondly, many of the staff highlighted that women with ID should be supported to fully participate in their local communities in order to promote and maintain positive mental health, and improve their coping strategies and social skills.

Su TP. (1987) Wholeblood serotonin in premenstrual syndrome. Obstetrics and Gynaecology, 70, 533-537. , Braddock D & McGuire DE. (1998) Overweight prevalence in persons with Down syndrome. Mental Retardation, 36,1751-181. Rubinow D. & Roy-Byrne P. (1984) Premenstrual syndromes: overview from methodological perspective. American Journal of Psychiatry, 141, 163-171. Scola PS. & Pueschel SM. (1992) Menstrual cycles and basal body temperature curves in women with Down syndrome. Obstetrics and Gynecology, 78, 91-94.

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